Term: Research Registry

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Glossary Definition

Last Updated: 2007-11-08

Definition:

Contains longitudinal population-based information for all individuals eligible or registered for health insurance benefits through the Manitoba Health Services Insurance Plan . Snapshot population registries are generated by Manitoba Health for administrative purposes, typically relevant for a short period of time and used by various claim-processing systems to verify eligibility requirements. These snapshots are combined to create a longitudinal population registry such that individual histories can be constructed over the entire period of the database. Every family is assigned a family registration number , and every individual is assigned a unique Personal Health Identification Number (PHIN) by the Ministry of Health. Histories generated using encrypted versions of these identifiers permit following individuals across time and across databases. This information helps to distinguish between those individuals with no contact with the health care system, those lost to follow-up (ineligibility associated with leaving the insurance plan), loss of continuity (two or more unlinked registrations over time for the same person), and mortality. The PHIN included in the research registry has been encrypted to protect privacy, but it does permit record linkage.

Related concepts 

• Family Size / Number of Children
• Research Registry at MCHP: An Overview

Related terms 

• Administrative Data
• Personal Health Identification Number (PHIN)
• Population Registry

References 

• Finlayson GS, Forget E, Ekuma O, Derksen S, Bond R, Martens P, De Coster C. Allocating Funds for Healthcare in Manitoba Regional Health Authorities: A First Step--Population-Based Funding. Manitoba Centre for Health Policy, 2007. [Full Report] [Summary] (View)

Term used in 

• Brownell M, Lix L, Ekuma O, Derksen S, Dehaney S, Bond R, Fransoo R, MacWilliam L, Bodnarchuk J. Why is the Health Status of Some Manitobans Not Improving? The Widening Gap in the Health Status of Manitobans. Winnipeg, MB: Manitoba Centre for Health Policy, 2003. [Full Report] [Summary] (View)
• De Coster C, Chateau D, Dahl M, Soodeen RA, McKeen N. Waiting Times for Surgery, Manitoba 1999/2000 to 2003/04. Winnipeg, MB: Manitoba Centre for Health Policy, 2007. [Full Report] [Summary] (View)
• Katz A, Soodeen RA, Bogdanovic B, De Coster C, Chateau D. Can the quality of care in family practice be measured using administrative data? Health Serv Res 2006;41(6):2238-2254. [Abstract] (View)
• Metge C, Kozyrskyj A, Dahl M, Yogendran M, Roos NP. Pharmaceuticals: Focussing on Appropriate Utilization. Winnipeg, MB: Manitoba Centre for Health Policy, 2003. [Full Report] [Summary] (View)
• Roos LL, Gupta S, Soodeen RA, Jebamani L. Data quality in an information-rich environment: Canada as an example. Can J Aging 2005;24 Suppl 1(Suppl 1):153-170. [Abstract] (View)
• Roos LL, Menec V, Currie RJ. Policy analysis in an information-rich environment. Soc Sci Med 2004;58(11):2231-2241. [Abstract] (View)
• Roos LL, Magoon J, Gupta S, Chateau D, Veugelers PJ. Socioeconomic determinants of mortality in two Canadian provinces: multilevel modelling and neighborhood context. Soc Sci Med 2004;59(7):1435-1447. [Abstract] (View)
• Roos LL, Soodeen RA, Bond R, Burchill C. Working more productively: Tools for administrative data. Health Serv Res 2003;38(5):1339-1357. [Abstract] (View)