Introduction

This concept identifies all of the health, social, justice and education data sources available in the Manitoba Population Research Data Repository (Repository) at MCHP that could be used for research into maternal / child health and early childhood. The concept also includes a list of selected variables from each data source that highlights what is available for this type of research. For purposes of this concept, the data sources and variables are divided into four time periods, focusing on prenatal, birth, postnatal to early childhood, and at any time during these periods.

The first section of this concept lists the most relevant data sources in the MCHP Data Repository for the periods of prenatal, birth and postnatal to early childhood, and then additional data sets that could be relevant at any time, depending on circumstances of the newborn/child and mother. This includes data from the areas of health, social, justice and education held in the MCP Repository.

The second section of this concept provides detailed information about each relevant data source in each period of time by providing:


• a link to the corresponding data description available on MCHP's external web site that contains a brief summary of the data and information on the source agency, purpose, years available, type, size, data level, components, access requirements and more;
  
• a brief description of what the data set contains;
  
• data highlights - a list of relevant variables that are available in the data; and
  
• links to additional information in the MCHP Concept Dictionary / Glossary that further describe the data, if available.

The last section of this concept identifies additional MCHP concepts that list and provide access to more detailed methodological information on common health status indicators used to measure maternal, newborn and child health in MCHP research. Links to these concepts are provided.

Data Sources by Timeframe

There are over 30 data sources identified in this concept. Some of these data sources focus on specific events that may occur during the prenatal, birth and postnatal to early childhood periods. Additional data sources that are listed focus on events that may occur at any time from pregnancy to early childhood, depending on individual circumstances. In order to present the information in a logical manner, we have divided the concept into the following four major sections, with a listing of each data source relevant in each section. The links below provide direct access to each section for easier navigation.


1. Prenatal
   
   • Medical Services (Physician Claims);
     
   • Midwifery Summary Reports;
     
   • Healthy Baby Community Support Program;
     
   • Healthy Baby Prenatal Benefit Program;
     
   • Hospital Abstracts;
     
   • Families First Screening / BabyFirst Screening;
     
   • Insight Mentoring Program; and
     
   • Manitoba Maternal Serum Screening Program.
   
   
2. Birth
   
   • Hospital Abstracts;
     
   • Midwifery Summary Reports; and
     
   • Families First Screening / BabyFirst Screening.
   
   
3. Postnatal to Early Childhood - includes health and social data sources relevant to the postnatal to early childhood period:
   
   
   • Health:
     
     • Hospital Abstracts;
       
     • Manitoba Adolescent Treatment Centre (MATC);
       
     • Manitoba Fetal Alcohol Spectrum Disorder;
       
     • Manitoba Immunization Monitoring System (MIMS)
       
     • Medical Services (Physician Claims);
       
     • Midwifery Summary Reports; and
       
     • Diabetes Education Resource for Children and Adolescents (DERCA).
     
     
   • Social:
     
     • BabyFirst Evaluation;
       
     • Child Day Care Program;
       
     • Early Development Instrument (EDI);
       
     • Healthy Baby Community Support Program; and
       
     • Insight Mentoring Program;
   
   
4. Additional Data Sources - includes additional health, social, justice and education data sources not already listed, that may be relevant over time:
   
   
   • Health
     
     • Cadham Provincial Laboratory (CPL);
       
     • Shared Health Diagnostic Services (SHDS);
       
     • Drug Program Information Network (DPIN);
       
     • Emergency Care – Admission Discharge and Transfer (ADT) and E-Triage;
       
     • Emergency Department Information System (EDIS);
       
     • Health Links / Info Sante;
       
     • Manitoba Cancer Registry;
       
     • Manitoba Health Insurance Registry;
       
     • Medicine;
       
     • Mental Health Management Information System (MHMIS);
       
     • Mental Health Information Database (MHID);
       
     • National Ambulatory Care Reporting System (NACRS); and
       
     • National Rehabilitation Reporting System (NRS).
     
     
   • Social
     
     • Canadian Census;
       
     • Child and Family Services (CFS);
       
     • Social Allowances Management Information System (SAMIN) – Employment Income Assistance (EIA);
       
     • Social Housing – Tenant Management System (TMS); and
       
     • Social Housing – Rent Assist.
     
     
   • Justice
     
     • Prosecutions Information and Scheduling Management (PRISM).
     
     
   • Education
     
     • Enrollment, Marks and Assessment (Kindergarten to grade 12); and
       
     • University of Manitoba Student data.

1. Prenatal Data Sources

Two of the most relevant data sources related to the prenatal period are:


• Medical Services Data Description - contains service claims for physician visits in offices, hospitals and outpatient departments; fee-for-service components for tests such as lab and x-ray procedures performed in offices and hospitals; payments for on-call agreements (e.g. anaesthetists) that are not attributed to individual patients; as well as information about a physicians' specialty.

  Data Highlights:
  

  • demographics (e.g.: birthdate, sex, postal code)
    
  • physician providing the service (e.g. physician ID number, physician specialty)
    
  • diagnosis – Note: only one diagnosis is recorded per claim / visit
    
  • service information (e.g.: date of service, tariff code and prefix, service fee)

  
  Note: Specific tariff codes can identify prenatal care visits. See the Prenatal Care Visits (PCV) concept for more specific information on the methods and codes used to identify prenatal care visits.

• Midwifery Summary Reports Data Description - contains administrative health data from the Midwifery Program in Manitoba concerning all women that receive prenatal, birth and postpartum care from a midwife.

  Data Highlights:
  

  • demographics (e.g.: birthdate, postal code)
    
  • pregnancy history (e.g.: gravida, parity)
    
  • consultations (e.g.; prenatal care)
    
  • planned place of birth
    
  • transfer of care
    
  • transport

Other data sources that relate to the prenatal period, depending on circumstances include:


• Healthy Baby Community Support Program Data Description - contains information about women who participate in social support and informal learning group programs available to all women from the prenatal period through to an infant's first birthday. These programs aim to encourage early, regular, prenatal care and promote healthy infant development by building women's confidence and awareness and offering healthy eating through cooking and nutrition activities.

  Data Highlights:
  

  • demographics (e.g.: age, marital status, high school graduate, receiving income assistance)
    
  • program attendance (e.g.: prenatal or postnatal)
    
  • number of times attended
    
  • infant breastfeeding

• Healthy Baby Prenatal Benefit Program Data Description - contains information about participation in a program that provides financial benefits to help women meet nutritional needs during pregnancy and acts as a mechanism for connecting women to health and community resources in their area. Data are available for all women who have applied for the benefit as well as the applicant's spouse (approximately 1/3 of women giving birth in Manitoba receive the benefit).

  Data Highlights:
  

  • demographics (e.g.: birth date, marital status)
    
  • income amount of applicant and applicant’s spouse
    
  • income source
    
  • education level
    
  • monthly amounts of benefit received

• Hospital Abstracts Data Description - contains individual hospital episode of care records completed after discharge that contain demographic, clinical and service information.

  Data Highlights:
  

  • demographics (e.g.: birthdate, sex, postal code)
    
  • admission and discharge dates
    
  • diagnosis and procedure codes
    
  • hospital service codes
    
  • Case Mix Group (CMG) information (e.g.: CMG, DPG, Resource Intensity Weight (RIW))

  
  Relevant hospital abstracts data in the prenatal period may be related to complications or conditions of the mother or fetus prior to birth.

• Families First Screening / BabyFirst Screening Data Description - contains survey data regarding the supports and challenges that families experience, including biological, social and demographic risk factors that may be present during the prenatal period. Screening information is captured for all families that have agreed to participate in the program. Data are collected within a week of a newborn's discharge from the hospital by Public Health nurses using the Families First / BabyFirst screening form.

  Data Highlights:
  

  • demographics and background information (e.g.: age, grade 12 completion, history of child abuse)
    
  • substance abuse (e.g.: alcohol, tobacco and drug use during pregnancy);
    
  • social / emotional (e.g.: relationship distress or violence, history of mental illnesses / depression, high school completion, social isolation, criminal involvement); and
    
  • physical and medical characteristics of the child (e.g.: congenital anomalies, low or high birth weight, infant trauma or illness, forceps used).

  
  For more information see the Families First Screening (FFS) / BabyFirst Screening (BFS) - Method of Creating a FFS / BFS Dataset concept.
  
  Note: Data from January 2000 to March 31, 2003 can be found in the BFS dataset. Data from 2003 onwards can be found in the FFS dataset.

• Insight Mentoring Program Data - contains information about women who participate in a program aimed at decreasing the number of children born with fetal alcohol spectrum disorder (FASD). The program is for women aged 18 years or older, have substance use problems, are pregnant (or have recently given birth and used alcohol or drugs during their pregnancy), and are not well-connected to community resources.

  Data Highlights:
  

  • intake interview (e.g.: history of child abuse, run away, and alcohol / drug use, living arrangements, medical and psychological conditions, comprehension, legal issues, and family/social issues)
    
  • 6-month assessment and exit interview reviewing specific issues and conditions
    
  • data related to the pregnancy of the target child (e.g. baby weight and size, birthdate, number of prenatal visits, alcohol / drug / tobacco use) and of other biological children of the client
    
  • goals (planning for and evaluation of)
    
  • Addiction Severity index (ASI) scores at intake and exit interviews

• Manitoba Maternal Serum Screening Program Data Description - contains clinical health data concerning the prenatal genetic screens of approximately 65% of Manitoban pregnancies each year.

  Data Highlights:
  

  • maternal data (e.g.; birthdate, weight, age at estimated date of delivery; number of times pregnant; number of living children)
    
  • gestation age: based on physical examination date, specimen date, BPD (bi-parietal diameter) or CRL (crown rump length) measures
    
  • screening indicators (e.g.: anencephaly, closed spina bifida, Down syndrome, Rh negative, )
    
  • current screening results (e.g. negative; positive for OSB, trisomy 18, trisomy 21, SLOS, AFP, DIA, hGC, uE3, Down syndrome)

2. Birth Data Sources

Two data sources provide information directly related to the birth of a child:


• Hospital Abstracts Data Description - contains individual hospital episode of care records completed after discharge that contain demographic, clinical and service information.

  Data Highlights:
  

  • demographics (e.g.: birthdate, sex, postal code)
    
  • admission and discharge dates
    
  • diagnosis and procedure codes
    
  • hospital service codes
    
  • Case Mix Group (CMG) information (e.g.: CMG, DPG, Resource Intensity Weight (RIW))

  
  For a birth, two different abstracts are created; a maternal abstract and a newborn abstract, that collect additional data related to the birth. The maternal abstract contains:
  

  • the outcome of delivery
    
  • gestational age
    
  • number of previous term deliveries, gravida and parity
    
  • prenatal visits (e.g.: count of visits, date of first prenatal visit)
    
  • smoking and alcohol use during pregnancy
    
  • newborn weight
    
  • number of previous spontaneous / therapeutic abortions

  
  The newborn abstract contains:
  

  • APGAR scores at 1 and 5 minutes
    
  • breastfeeding initiation
    
  • gestation
    
  • presentation at birth
    
  • birthweight

  
  See the Maternal Abstract and the Newborn Separation Abstract glossary terms for more information.

• Midwifery Summary Reports Data Description - contains administrative health data from the Midwifery Program in Manitoba concerning all women that receive prenatal, birthing and postpartum care from a midwife.

  Data Highlights:
  

  • demographics (e.g.: birthdate, postal code)
    
  • maternal outcomes (e.g.: interventions during labour)
    
  • birth outcomes (e.g.: type of birth, APGAR scores, birth weight)
    
  • breastfeeding initiation
    
  • transfer of care
    
  • transport

• Families First Screening / BabyFirst Screening Data Description - contains survey data regarding the supports and challenges that families experience, including biological, social and demographic risk factors, during the prenatal period, as well as physical and medical characteristics of the child at birth. Screening information is captured for all families that have agreed to participate in the program. Data are collected within a week of a newborn's discharge from the hospital by Public Health nurses using the Families First / BabyFirst screening form.

  Data Highlights:
  

  • demographics and background information (e.g.: age, grade 12 completion, history of child abuse)
    
  • substance abuse (e.g.: alcohol, tobacco and drug use during pregnancy);
    
  • social / emotional (e.g.: relationship distress or violence, history of mental illnesses / depression, high school completion, social isolation, criminal involvement); and
    
  • physical and medical characteristics of the child (e.g.: congenital anomalies, low or high birth weight, infant trauma or illness, forceps used).

  
  For more information see the Families First Screening (FFS) / BabyFirst Screening (BFS) - Method of Creating a FFS / BFS Dataset concept.
  
  Note: Data from January 2000 to March 31, 2003 can be found in the BFS dataset. Data from 2003 onwards can be found in the FFS dataset.

3. Postnatal to Early Childhood Data Sources

The data sources listed in this section relate to specific health and social events that may occur during the postnatal to early childhood time period, depending on individual circumstances.

Health Data - Postnatal to Early Childhood

• Hospital Abstracts Data Description - contains individual hospital episode of care records completed after discharge that contain demographic, clinical and service information.

  Data Highlights:
  

  • demographics (e.g.: birthdate, sex, postal code)
    
  • admission and discharge dates
    
  • diagnosis and procedure codes
    
  • hospital service codes
    
  • Case Mix Group (CMG) information (e.g.: CMG, DPG, Resource Intensity Weight (RIW))

• Manitoba Adolescent Treatment Centre (MATC) Data Description - contains summary information on mental health services provided to Manitoba children and adolescents who experience psychiatric and/or emotional disorders.

  Data Highlights:
  

  • demographics (e.g.: birthdate, sex, child status)
    
  • intake assessment (e.g.: personal and familial drug and alcohol use, abuse, mental health conditions, social issues)
    
  • referral information (e.g.: referred from, dates)
    
  • program data (e.g.: diagnosis, professionals involved, program area, admission / separation dates)
    
  • visit information (e.g.: type of assessment, clinical assessment location, type of treatment

• Manitoba Fetal Alcohol Spectrum Disorder Data Description - contains clinical health data on services provided to Manitoba preschool children, school age children, adolescents, and adults with Fetal Alcohol Spectrum Disorder (FASD) identified through the Manitoba FASD Centre program.

  Data Highlights:
  

  • reason for referral
    
  • history, growth parameters
    
  • developmental assessment
    
  • genetic assessment
    
  • diagnosis
    
  • behavioural/OT concerns

• Manitoba Immunization Monitoring System (MIMS) Data Description - contains data on immunization histories of Manitoba Health registrants. Note: prior to 2000/2001, only children under the age of 18 were included.

  Data Highlights:
  

  • demographics (e.g.: sex, birthdate, region, postal code)
    
  • type of vaccine administered
    
  • vaccine sequence schedule
    
  • service date
    
  • provider information

  
  Please see the following concepts for related information: Adult Immunization; Childhood Immunization and Vaccine Safety.

• Medical Services Data Description - contains service claims for physician visits in offices, hospitals and outpatient departments; fee-for-service components for tests such as lab and x-ray procedures performed in offices and hospitals; payments for on-call agreements (e.g. anaesthetists) that are not attributed to individual patients; as well as information about a physicians' specialty.

  Data Highlights:
  

  • demographics (e.g.: birthdate, sex, postal code)
    
  • physician providing the service (e.g. physician ID number, physician specialty)
    
  • diagnosis – Note: only one diagnosis is recorded per claim / visit
    
  • service information (e.g.: date of service, tariff code and prefix, service fee)

• Midwifery Summary Reports Data Description - contains administrative health data from the Midwifery Program in Manitoba concerning all women that receive prenatal, birth and postpartum care from a midwife.

  Data Highlights:
  

  • demographics (e.g.: birthdate, postal code)
    
  • pregnancy history (e.g.: gravida, parity)
    
  • consultations (e.g.; prenatal care)
    
  • planned place of birth
    
  • transfer of care
    
  • transport

• Diabetes Education Resource for Children and Adolescents (DERCA) Data Description - contains clinical health data for children diagnosed with diabetes in Manitoba. All children diagnosed with youth onset Type 1 Diabetes and Type 2 Diabetes, since January 1986 are included.

  Data Highlights:
  

  • demographics (e.g.: birthdate, sex, postal code, province, care status, family status)
    
  • clinical information (e.g.: type of diabetes, associated conditions, clinical status, test code, test value)
    
  • physicians involved (e.g.: referring doctor, patient's doctor)
    
  • visit information (e.g.: age at visit, admissions to hospital since last visit, BMI, blood pressure, height, weight, service referrals)

Social Data - Postnatal to Early Childhood

• BabyFirst Evaluation Data Description - contains data collected as part of a provincial assessment of the BabyFirst home visiting program conducted by Healthy Child Manitoba (HCM) - services now delivered by Manitoba Child and Youth programs. This evaluation focused on effects of the BabyFirst home visiting program (a targeted, multiyear, provincial home visiting program for families with newborns living under conditions of risk) on parent and parent-child outcomes.

  Data Highlights:
  

  • 5-minute Apgar scores
    
  • social, economic, and health-related outcomes for all families with newborns who were determined to be eligible for the program.

  
  Note: The BabyFirst Evaluation Program data consists of 250 records between January 1, 2000 and March 31, 2003. The Families First Program replaced the BabyFirst program in 2003.

• Child Day Care Program Data Description - contains information on children enrolled in provincially licensed child care facilities whose families paid a subsidized rate (about 12, 500 out of 25, 000 spaces).

  Data Highlights:
  

  • child and family information (e.g.: child age category, rate, subsidy indicator, status, start and end dates, applicant and co-applicant information)
    
  • staffing information (e.g.: type of staff, status)
    
  • facility specific details which identify the location of the facility, the number of spaces and the ages of children for which the facility is approved.

  
  For more information, see the Regulated Child Day Care in Manitoba concept.

• Early Development Instrument (EDI) Data Description - contains data used to assess kindergarten children's developmental health and a child's readiness to learn in school. The assessment covers five domains:

  • physical health and well-being
    
  • social knowledge and competence
    
  • emotional health/maturity
    
  • language and cognitive development
    
  • general knowledge and communication skills

  
  For more information, see the Early Development Instrument (EDI) Outcomes concept.

• Healthy Baby Community Support Program Data Description - contains information about women who participate in social support and informal learning group programs available to all women from the prenatal period through to an infant's first birthday. These programs aim to encourage early, regular, prenatal care and promote healthy infant development by building women's confidence and awareness and offering healthy eating through cooking and nutrition activities.

  Data Highlights:
  

  • demographics (e.g.: age, marital status, high school graduate, receiving income assistance)
    
  • program attendance (e.g.: prenatal or postnatal)
    
  • number of times attended
    
  • infant breastfeeding

• Insight Mentoring Program Data - contains information about women who participate in the Insight Mentoring Program that is aimed at decreasing the number of children born with fetal alcohol spectrum disorder (FASD). The program is for women aged 18 years or older, have substance use problems, are pregnant (or have recently given birth and used alcohol or drugs during their pregnancy), and are not well-connected to community resources.

  Data Highlights:
  

  • intake interview (e.g.: history of child abuse, run away, and alcohol / drug use, living arrangements, medical and psychological conditions, comprehension, legal issues, and family/social issues)
    
  • 6-month assessment and exit interview reviewing specific issues and conditions
    
  • data related to the pregnancy of the target child (e.g. baby weight and size, birthdate, number of prenatal visits, alcohol / drug / tobacco use) and of other biological children of the client
    
  • goals (planning for and evaluation of)
    
  • Addiction Severity index (ASI) scores at intake and exit interviews

4. Additional Data Sources - Over Time

There are many additional data sources available in the MCHP Data Repository that may contain relevant data, depending on events / circumstances that arise and the interest of a research project. These data sources can be divided into four major categories: health, social, justice and education.

Health Data - Over Time

• Cadham Provincial Laboratory (CPL) Data Description - contains public health laboratory services and reference services for the identification and typing of microorganisms.

  Data Highlights:
  

  • demographics (e.g.: birthdate, sex, postal code)
    
  • clinical information (e.g.: tests, screens and results) related to serology, parasitology, microbiology and virus detection

  
  For more information, see the CADHAM Provincial Laboratory (CPL) - Overview of Services and Data concept.

• Shared Health Diagnostic Services (SHDS) - currently named Diagnostic Services Manitoba (DSM) - Data Description - contains information on laboratory and diagnostic imaging services for Manitobans. This includes chemistry, immunology, hematology and microbiology lab tests.

  Data Highlights:
  

  • demographics (e.g.: birthdate, sex)
    
  • clinical information (e.g.: test codes, descriptions and results) related to chemistry, hematology, immunology and microbiology
    
  • collection information (e.g.: date, location, requesting lab/hospital/doctor)

• Drug Program Information Network (DPIN) Data Description - contains individual level prescription drug transaction claim information from DPIN.

  Data highlights:
  

  • patient demographics (e.g.: birthdate, sex, postal code)
    
  • drug identification number (DIN)
    
  • drug cost / amount paid
    
  • prescriber specialty

• Emergency Care – Admission Discharge and Transfer (ADT) and E-Triage Data Description - contains information on visits to the Emergency Department (ED) at hospitals in Winnipeg.

  Data Highlights:
  

  • method of arrival
    
  • time spent in ER
    
  • entrance complaint and condition (e.g.: pulse, blood pressure) upon arrival
    
  • triage Code (e.g. resuscitation, emergent, urgent, less urgent, non-urgent, scheduled, direct admission)
    
  • disposition status

  
  Note: The ADT E-Triage data is available from 1999/2000 to 2010/2011. After this date, emergency care data is captured in the Emergency Department Information System (EDIS) (see data description below).

• Emergency Department Information System (EDIS) Data Description - contains data about a patient's visit to the emergency department, from first point of entry at the triage desk through to discharge.

  Data Highlights:
  

  • visit reason, chief complaint and specific condition(s) on arrival
    
  • triage information (e.g.: CTAS description)
    
  • orders for blood work, diagnostic tests, medications and other services
    
  • consultation requests
    
  • quantitative measurements of time of care
    
  • arrival, transfer and discharge disposition

• Health Links / Info Sante Data Description - contains information about the public health telephone referral service. Each call is documented, asking a series of questions about the concern and directing the caller to the appropriate resources for the required level of medical care.

  Data Highlights:
  

  • call information (e.g.: start and end date/time, call reason, source)
    
  • triage
    
  • care advice
    
  • outcome details

• Manitoba Cancer Registry and Treatment Data Description - contains a registry of all Manitobans diagnosed with cancer and the treatment they received.

  Data Highlights:
  

  • demographics (e.g.: sex, birthdate, age at diagnosis, postal code at diagnosis)
    
  • cancer diagnosis (e.g.: site, type of cancer, diagnosis method and stage at diagnosis)
    
  • treatment information (e.g.: surgery, chemotherapy or radiation therapy)

  
  For more information, see the Overview of the Manitoba Cancer Registry and Treatment Data concept.

• Manitoba Health Insurance Registry Data Description - contains a longitudinal population-based registry of all individuals who have been registered with Manitoba Health at some point since 1970. It provides historical information for follow-up to track residents for longitudinal and intergenerational analyses. MCHP receives a copy of the registry data semi-annually (twice a year) from Manitoba Health.

  Data Highlights:
  

  • demographics (e.g.: birthdate, sex, postal code)
    
  • family structure / composition information derived from elements within the registry (e.g.: from the family Registration number (REGNO) / (REGNO_CODE))
    
  • dates related to entry into province and migration within and out of province - residential mobility
    
  • health insurance eligibility and coverage effective dates

  
  For more information, please see the Manitoba Health Insurance Registry / MCHP Research Registry - Overview concept.

• Medicine Data Description - contains episode of care information for individuals admitted to a Medicine ward in any of four Winnipeg hospitals.

  Data Highlights:
  

  • demographics (e.g.: birthdate, province)
    
  • admission and discharge dates, length of stay and transfers among Medicine wards
    
  • patient type and diagnoses
    
  • complications and comorbidities
    
  • functional status (ADL) scores
    
  • acuity scores (e.g.: APACHE, APS, SAPS)
    
  • TISS (Therapeutic Intervention Scoring System) - neurological, cardiovascular, respiratory, gastrointestinal/genitourinary/metabolic, meds and IVs, general, and procedures and test
    
  • lab test results

• Mental Health Management Information System (MHMIS) Data Description - contains comprehensive case management information for Manitoba residents who receive clinical, social, or rehabilitation services for mental health.

  Data Highlights:
  

  • demographics (e.g.: birthdate, birth place, sex, education level, postal code)
    
  • case information (e.g.: status, type)
    
  • encounter information (e.g. encounter type, region, facility, legal status, living arrangement, program involvement, types of therapy)
    
  • diagnostic information (ICD-9CM and DSM-III or DSM-IV)

  
  For more information, please see the Mental Health Disorder / Mental Health Illness Classification concept.

• Mental Health Information Database (MHID) Data Description - contains case management information for patients who receive community mental health services in Winnipeg. The MHID data is available from 2010/2011 forward.

  Data Highlights:
  

  • case information (e.g.: case type, open and close dates, program information and reason for closure)
    
  • community area and office
    
  • diagnostic information (ICD-9-CM)
    
  • legal status

• National Ambulatory Care Reporting System (NACRS) Data Description - contains level 1 and level 3 submission records / data from Winnipeg hospitals.

  Data Highlights:
  

  • demographics (e.g.: birthdate, education level, sex, postal code)
    
  • arrival type
    
  • dates (e.g.: registration, separation)
    
  • triage level
    
  • CACS (Comprehensive Ambulatory Classification System) group
    
  • length of stay - hours
    
  • discharge disposition

• National Rehabilitation Reporting System (NRS) Data Description - contains data related to rehabilitative services provided in Winnipeg's seven major hospitals.

  Data Highlights:
  

  • demographics (e.g.; birthdate, sex, postal code, language)
    
  • FIM (Functional Independence Measure) assessment (e.g.: bathing, bladder, bowel, eating, grooming, locomotion, problem solving, social interaction, transfers, toileting) on admission and discharge
    
  • communication assessment (e.g.: auditory, reading, verbal, written)
    
  • living arrangements, vocational status
    
  • RPG (Rehabilitation Patient Group) information (e.g.: CIHI RPG, RPG Cognitive function score, RPG motor function score)
    
  • admission and discharge dates
    
  • reason for discharge

Social Data - Over Time

• Canadian Census Data Description - contains survey data based on the Manitoba population, which includes individual level and aggregate level demographic information for persons within a dissemination area (400-700 people).

  Data Highlights:
  

  • demographics (e.g.: age, sex, marital status)
    
  • employment type
    
  • household income (based on 20% of the survey population) at the dissemination area level.

  
  Note: - household income values are used at MCHP to develop an area measure of socio-economic status (SES) called "income quintiles". See the Income Quintiles - Child Health Income Quintiles concept for more information.

• Child and Family Services (CFS) Data Description - contains information concerning children in care and families receiving protection and support services from Manitoba Family Services.

  Data Highlights:
  

  • reasons for being taken into care
    
  • legal status of the child
    
  • placement – where the child is placed

  
  For more information, see the Children in Care (CIC) – Overview of Terminology and Characteristics concept.

• Social Allowances Management Information System (SAMIN) Data Description - contains information on Manitoba residents who receive support from the Employment and Income Assistance (EIA) Program, a provincial program of last resort for people who need help to meet basic personal and family needs.

  Data Highlights:
  

  • data is available at the client or family level
    
  • demographics (e.g.: birthdate, sex, marital status, level of care indicators, postal code)
    
  • case characteristics (e.g.: effective dates, case category, status)
    
  • case needs and shelter needs (e.g.: accommodation type, number of rooms, heating, utilities, northern food allowance, special care, rent, condo fees, furnished, washer/dryer)
    
  • monthly income assistance amount needed / paid
    
  • disability indicators (e.g.: mental health, mental retardation, physical disability, other)
    
  • education / training information (e.g.: area of study)
    
  • earnings (e.g.: gross, net income)
    
  • employment details

  
  For more information, see the Employment and Income Assistance concept.

• Social Housing – Tenant Management System (TMS) Data Description - contains data used to identify and track the use of all people/families living in housing units managed by the Social Housing Program in Manitoba.

  Data Highlights:
  

  • client information (e.g.: demographics (e.g.: birthdate, sex), client type (e.g.: applicant, dependent), income source, assessment of priority)
    
  • building information (e.g.: type of building, features (e.g.: construction type, heating type), rentable area, unit size, location, status, rental amount)
    
  • application information (e.g.: reason for application, status application/approval/review/cancel dates)

• Social Housing – Rent Assist Data Description - contains applications and distributions of a monthly benefit which helps seniors, families, persons with disabilities, and others receiving income assistance pay their rent.

  Data Highlights:
  

  • demographics (e.g.: birthdate, marital status)
    
  • program data (e.g.: client type, type of program, status, effective and review dates, benefit amount)

Justice Data - Over Time

• Prosecutions Information and Scheduling Management (PRISM) Data Description - contains information on incidents (e.g. domestic trouble, break and enter) as well as charges and involvements (e.g. witness, accused, victim) relating to those incidents. This data does not include the outcomes of charges.

  Data Highlights:
  

  • incidents (e.g.: incident type, date of incident, city and postal code of incident, involvement type, scrambled Justice identification number)
    
  • charges (e.g.: involvement type, scrambled Justice identification number, type of charge)

Education Data - Over Time

• Enrollment, Marks and Assessment Data Description - contains enrollment, grades (marks), and assessments of individual Manitoba students from Kindergarten to Grade 12.

  Data Highlights:
  

  • individual level demographics and enrollment histories (grade levels and courses taken)
    
  • course marks and results for standards tests and grade level assessments
    
  • graduation (grade 12) status

  
  For more information, please see the Education Overview: Links to Education-related Data, Concepts and Glossary Terms concept.

• University of Manitoba Student Data Description - contains information on students who applied to and attended classes at the University of Manitoba.

  Data Highlights:
  

  • student information (e.g.: demographics (e.g.: birthdate, sex), high school classes/marks/average/awards, country of origin, fees)
    
  • Administration:
    • applications (e.g.: status, program, admission code, dates)
      
    • degrees (e.g.: category, type of degree, faculty, program, dates)
  • Courses:
    • high school courses (e.g.: course code/description, completion date, final grade)
      
    • U of M courses (e.g.: course identification, grades, credits, dates)
      
    • Term attendance (e.g.: program level and description)

Concepts Related to Maternal / Child Health

MCHP has developed several indicators that measure aspects related to maternal and child health and are documented in the online Concept Dictionary. There are four specific concepts available that provide an overview of these indicators and links to the detailed methodological information contained in the Concept Dictionary. The concepts are identified and described below, along with a hyperlink to each concept.

1. Maternal and Newborn Health Status Indicators

This concept identifies and lists the maternal and newborn health status indicators reported in the Perinatal Services and Outcomes in Manitoba deliverable by Heaman et al. (2012). The concept lists the indicators, and provides links to the corresponding definition or concept and to the related methods and discussion sections that are documented in the deliverable. The five categories of indicators are listed below, along with some of the indicators included in each category. For more complete information, see the Maternal and Newborn Health Status Indicators concept.


1. Profile of Women Giving Birth - women giving birth with less than a Grade 12 education; women giving birth receiving income assistance; live births to teen mothers; and live births to women aged 35 and older.
   
2. Maternal Prenatal Health - alcohol consumption during pregnancy; smoking during pregnancy; use of infertility drugs prior to live birth; and antenatal hospitalizations.
   
3. Giving Birth - travelling to give birth – by distance or outside of RHA; induction of labour; breech births; and severe maternal morbidities.
   
4. Maternal Postpartum Health - breastfeeding initiation; postpartum hospital readmission; and postpartum psychological distress.
   
5. Fetal and Newborn Health - stillbirths; small / large for gestational age; five-minute APGAR score of 7 or less; and neonatal Special Care Unit (SCU) admission.

2. Child Health Indicators

There are three concepts available that provide detailed information on the child health indicators used in MCHP research over time. These concepts reflect different time periods and contain similar information / indicators. Each concept contains hyperlinks to more detailed information in the MCHP Concept Dictionary / Glossary, and to the corresponding information in each research project.

For example, the concept Child Health Indicators (2008) lists all of the child health indicators presented in the Manitoba Child Health Atlas Update deliverable by Brownell et al. (2008). The nine categories of indicators used in this report are listed below, along with some of the indicators included in each category. For more complete information, see the Child Health Indicators (2008) concept.


1. Perinatal Health - teen pregnancy; caesarean sections (C-section); breastfeeding initiation; and newborn readmissions.
   
2. Health Care Utilization - childhood immunizations; injury hospitalizations; physician visits; and continuity of care.
   
3. Use of Prescription Medications - any prescription; antibiotics; antidepressants; and psycho-stimulants.
   
4. Infant and Child Mortality - infant mortality; stillbirths; child mortality; and injury mortality.
   
5. Education - retention (continuing students); school mobility; and high school completion.
   
6. Nutrition and Physical Activity - fruit and vegetable consumption; physical activity; and exposure to second-hand smoke.
   
7. Childhood Chronic Conditions - asthma; diabetes; and autism spectrum disorders.
   
8. Community and Social Services - licensed child care spaces; receipt of income assistance (IA); and children in care.
   
9. Adolescent Health and Reproductive Health - adolescent smoking; condom use; and birth control pill use

The other two concept are:


• Child Health Status Indicators (2001) based on the information in the MCHP Deliverable Assessing the Health of Children in Manitoba: A Population-Based Study (2001), and
  
• Child Health Indicators (2012) based on the information in the MCHP Deliverable How Are Manitoba's Children Doing? (2012).
  
  These two concept list some of the same indicators used in the 2008 Deliverable, but are organized differently than the 2008 information.

Cautions / Limitations

The following cautions / limitations apply to this concept:


• this concept does not contain a detailed listing of all the variables that are available in each of the databases. The concept is intended to provide a summary of all the data sources related to maternal / child health and early childhood, and includes some of the relevant variables available in each data source. This includes data sources from the health, social, justice and educational areas of the MCHP Data Repository. For more information on each of the data sources, please see the Data Descriptions available on our web site.
  
  
• although some of the earliest data in the MCHP Repository dates back to 1970, NOT ALL the data listed in this concept is available that far back, or for current years. Please see the Data Years Chart on our external web site to identify what years of data are currently available for each of the data sets.
  
  
• the work on this concept was undertaken in September 2015 to July 2016 and the content in this concept is subject to change. Clarification and verification of the data available and the years of data available for each data source is recommended prior to beginning any study using any of this data. For more information, please contact MCHP at info@cpe.umanitoba